We gained a few details today, like the fact that the latest tests show that CJ has balance impairment of 66% on her left side and 44% on her right, and that she has indeed been diagnosed with an "A. Chiari malformation", and that her hearing is normal but they think the balance problems may be coming from inner ear damage, etc. etc. BUT NO CLOSER TO FIGURING OUT WHAT TO DO. They are sending her back to neurology and once again we will attempt to insist on a referral not just to an outside civilian doctor, but to a major facility who deals with Chiari on a regular basis. And yes, thanks for all your recommendations...we now know where the good ones are :-)
CJ has handled the non-event today very well. I'm looking for the valium ;-)
Praise God from Whom ALL blessings flow...despite my frustration He is in perfect, loving control...
To anyone who stops by the blog today, please pray for CJ. We are seeing the doctor this afternoon who has looked at her latest brain stem MRI's and will be attempting to point us in the direction of next steps. She seems fairly relaxed about the appointment, but not so her mother. I've done my best to give it to God in prayer this morning and last night, and though my heart is at peace, my stomach is still in knots.
Will update tonight. Thank you for your prayers.